The Better Evidence And Translation – Chronic Kidney Disease (BEAT-CKD) is funded by a NHMRC Program Grant (APP1092957) that supports four research and translation platforms, including the ANZDATA Registry. BEAT-CKD aims to improve the lives of people living with chronic kidney disease in Australia and globally by generating high-quality research evidence to inform healthcare decisions made by patients, health professionals, and policy makers. The three other platforms are Australian Kidney Trials Network (AKTN), Kidney Health Australia Caring for Australians with Renal Impairment (KHA-CARI Guidelines) and Cochrane Kidney and Transplantation (Cochrane).

In June 2018, the Minister for Indigenous Health, the Hon Ken Wyatt MP, established an expert panel, convened by ANZDATA’s Executive Officer, Professor Stephen McDonald, to investigate and identify barriers faced by Indigenous people in accessing and maintaining a kidney transplant. The TSANZ Performance Report, “Improving Access to and Outcomes of Kidney Transplantation for Aboriginal and Torres Strait Islander People in Australia”, constitutes the first piece of work produced by the expert panel, as commissioned by the Commonwealth Department of Health. The Report provides a detailed analysis of available evidence around:

  1. Evidence and gaps around steps to waitlisting and to long term transplant function;
  2. Improving Indigenous dialysis patients’ health to improve their capacity to be listed; and
  3. Measures to address these gaps.

After receiving the Report, the Minister for Indigenous Health announced funding of $2.3 million to establish a National Indigenous Kidney Transplantation Taskforce, which will be responsible for implementing and evaluating the Report’s priority recommendations, as outlined in the Executive Summary.

Performance Report (published March 2019)

The National Indigenous Kidney Transplantation Taskforce (NIKTT) is an initiative of the Transplantation Society of Australia and New Zealand, funded by the Commonwealth Department of Health, to improve access to kidney transplantation for Aboriginal and Torres Strait Islander people. Membership of the NIKTT comprises 26 stakeholders from a variety of disciplines including Indigenous kidney community members, nephrologists, nurses, policymakers, researchers, primary care and allied health professionals. The NIKTT Secretariat work alongside the ANZDATA Registry, housed within the South Australian Health and Medical Research Institute.

National Indigenous Kidney Transplantation Taskforce