Our committees are identified in governance structures for operational activities within the Registry. They include the Executive Committee, ANZDATA Advisory Committee, ANZOD Advisory Committee, Working Groups and Registry Management.
Our Committees
Executive Committee
The ANZDATA Executive Committee is responsible:
- for day-to-day management of the registry including administration of the budget, management of human resources and negotiations with funding bodies
- Ensures compliance with policies and fulfillment of statutory responsibilities
- Supports the function of working groups
- Ensures finances are audited annually and report these to the Advisory Committee.
The committee includes the Executive Officer, Deputy Executive Officer, Registry General Manager, current Chair of the Advisory Committee and past Chair of the Advisory Committee.
Membership
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Professor Stephen McDonald
Executive Officer
Based at the Royal Adelaide Hospital, Professor Stephen McDonald is Director of Dialysis and a Senior Staff Nephrologist at The Central Northern Renal and Transplantation Service; and Clinical Director of Renal Services for the Country Health region of SA Health. He is Executive Director of the Australia and New Zealand Dialysis and Transplant Registry, and holds academic status as Clinical Professor in the Department of Medicine of the University of Adelaide, and Principal Research Fellow in the SA Health and Medical Research Institute.
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Dr Philip Clayton
Deputy Executive Officer and Editor
Dr Philip Clayton is a Consultant Nephrologist at the Royal Adelaide Hospital and Editor of the Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry Annual Report. His research interests include donor and recipient selection and outcomes, deceased donor kidney allocation, acute rejection, post-transplant diabetes mellitus and recurrent renal disease.
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Ms Kylie Hurst
General Manager and Nursing Director
Kylie Hurst is General Manager for the Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), which includes the Australia and New Zealand Organ Donation Registry (ANZOD) and the Australian and New Zealand Living Kidney Donor Registry (ANZLKD). She holds the academic qualifications of a Bachelor of Nursing and a Graduate Diploma of Nephrology. Her dedicated interest is end stage renal disease treatment, organ donation and transplantation outcomes and has a passionate interest in clinical quality registry development.
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Professor Alan Cass
Chair of the Advisory Committee
Professor Alan Cass is a leading Australian kidney specialist with extensive experience in Indigenous health and Indigenous communities, developed through his wide-ranging career as a kidney health researcher.
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A/Professor Nick Gray
Deputy Chair of the Advisory Committee
Associate Professor Nicholas Gray is a Nephrologist, initially graduating from the University of Adelaide and completing his training in Queensland, Northern Territory, and South Australia. His areas of research interest include rural health, chronic kidney disease and haemodialysis, particularly long hour dialysis.
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Professor Matthew Jose
Past Chair of the Advisory Committee
Professor Matthew Jose is the Professor of Medicine in the School of Medicine at the University of Tasmania, Adjunct Professor at the Menzies Institute for Medical Research and a Renal Physician at the Royal Hobart Hospital. He is passionate about improving the lives of people with kidney disease, safe and effective clinical care, and teaching, mentoring and supporting health professionals. Matthew was Chair of the ANZDATA Registry Steering Committee from 2014 – 2019.
ANZDATA Advisory Committee
The primary responsibilities of the ANZDATA Advisory Committee are to determine policy regarding:
- Data collection, including frequency, quantity, quality and type of data collected as well as methods of collection
- Dissemination of information from the Registry in the form of reports and publications
- Release of data from the Registry to contributors, government, industry and others seeking access to the database
- Function and membership of the various working groups
In addition, the ANZDATA Advisory Committee will:
- Ensure that the staffing of the Registry is appropriate to meet the objectives with respect to data collection, database management, analysis and dissemination
- Ensure that the data collection and database management comply with the appropriate privacy legislation and regulations as apply in Australia and New Zealand and their jurisdictions
- Report formally to key stakeholders including funder’s and professional bodies on the activities of the Registry
- Advise the Executive on sources of income for the Registry
Membership
Advisory Committee Chair - ANZDATA
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Prof. Alan Cass
Chair of the Advisory Committee
Professor Alan Cass is a leading Australian kidney specialist with extensive experience in Indigenous health and Indigenous communities, developed through his wide-ranging career as a kidney health researcher.
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A/Prof. Nick Gray
Deputy Chair of the Advisory Committee
Associate Professor Nicholas Gray is a Nephrologist, initially graduating from the University of Adelaide and completing his training in Queensland, Northern Territory, and South Australia. His areas of research interest include rural health, chronic kidney disease and haemodialysis, particularly long hour dialysis.
Registry Management
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Prof. Stephen McDonald
ANZDATA Executive Officer
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Dr Philip Clayton
Deputy Executive Officer
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Ms Kylie Hurst
Registry General Manager
Epidemiology Fellow
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VACANT
Epidemiology Fellow
Working Group Convenors
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Dr Matthew Roberts
Working Group Convenor - Haemodialysis
Dr Matthew Roberts is a full-time Nephrologist at Eastern Health in Melbourne and Adjunct Associate Professor in the Eastern Health Clinical School, Monash University. His PhD was on biochemical markers of cardiovascular disease in patients with all stages of chronic kidney disease, which he completed in 2007.
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Ms Monique Borlace
Working Group Convenor - Peritonenal Dialysis
Monique has been working as a Nephrology nurse for over 25 years and as a Nephrology Nurse Practitioner since July 2015 within South Australia. She has worked in all domains of Nephrology nursing throughout this time with a dedicated focus on Home Dialysis both in Peritoneal Dialysis and Haemodialysis.
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Dr Bill Mulley
Working Group Convenor - Transplantation
A/Prof. William Mulley is a renal transplant physician with a full-time clinical role at Monash Medical Centre, Melbourne, Australia and is a Clinical Adjunct Associate Professor with Monash University. A/Prof. Mulley also has active clinical research interests particularly in antibody mediated rejection and the balance between rejection and infection in transplant recipients. He is currently running a randomized clinical trial in chronic antibody mediated rejection.
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Dr Amelia Le Page
Working Group Convenor - Paediatric (PAED)
Amelia Le Page is a Paediatric Nephrologist based at Monash Children’s Hospital, Victoria.
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VACANT
Working Group Convener - Aotearoa New Zealand
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Dr Jaqueline Hughes
Working Group Convenor - Aboriginal and Torres Strait Islander Health
Dr Jaqui Hughes is Australia’s first Indigenous kidney specialist and clinical nephrologist, she is also an Early Career Research Fellow at Menzies School of Health Research in Darwin. Jaqui has been Australian convenor of ANZDATA Registry Indigenous Health Working Group since 2014.
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Assoc. Prof. Rachael Morton
Working Group Convenor - Patient Report Outcome Measures
A health economist, Rachel Morton is the Deputy Director of Research at the NHMRC Clinical Trials Centre, and an Executive Board Member of the Health Services Research Association of Australia and New Zealand (HSRAANZ). Her current research program focuses on the incorporation of patient-centred and economic outcomes into clinical trials that facilitate policy decision making on the basis of values and preferences, as well as cost-effectiveness.
General Members
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Dr Michael Collins
General Member
Dr Michael Collins is a Nephrologist based at Auckland City Hospital, New Zealand. Michael obtained a PhD in transplant immunology while working as a part-time Consultant Nephrologist at the Royal Adelaide Hospital in Australia. Michael’s research focuses on improving the clinical care of kidney transplant recipients by conducting clinical trials of interventions to improve transplant outcomes.
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VACANT
General Member
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VACANT
General Member
Stakeholders
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Terry Jennings
Renal Society of Australasia (RSA) Representative
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Dr Shilpa Jesudason
Kidney Health Australia (KHA) Clinical Director
Dr Shilpa Jesudason represents Kidney Health Australia (KHA) the peak organisation for patients living with kidney disease, their families and community. She is a Staff Specialist Nephrologist (Central Northern Adelaide Renal and Transplant Service (CNARTS) and Consulting Renal Physician (Women’s and Children’s Hospital). Her current clinical interests include the management of pregnancy-related issues in women with renal disease, including all stages of CKD, dialysis and transplant patients, living kidney donors and women with hypertension.
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Dr Neil Boudville
Australia and New Zealand Society of Nephrology (ANZSN) Council Observer
Neil Boudville is Professor of Renal Medicine and Sub-Dean for the Faculty of Medicine at the University of Western Australia. He is also the Head of Department of the Renal Unit at Sir Charles Gairdner Hospital and the Medical Director of the WA Home Dialysis Program (WAHDiP).
Advisory Meeting Minutes
The ANZDATA Advisory Committee convene four times a year; three teleconferences (TC) and one face to face (F2F) meeting, held annually in August.
ANZDATA Advisory Committee (AAC) Meeting Minutes
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AAC Meeting Minutes 2019 November 8 (TC)
20191120-ANZDATA_AC_Minutes_v2-published.docx
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AAC Meeting Minutes 2019 May 15 (TC)
20190515-ANZDATA_AC_Minutes_v2.0.pdf
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AAC Meeting Minutes 2019 February 13 (TC)
20190213-ANZDATA_AC_Minutes_v2.0.pdf
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AAC Meeting Minutes 2018 August 8 (F2F)
20180808-ANZDATA_AC_Minutes_v1.0.pdf
ANZOD Advisory Committee
The ANZOD Advisory Committee is responsible:
- Advise ANZOD on activities that best inform organ donation practice across Australia and New Zealand
- Provide a consultative forum that can effectively provide advice on the current and future direction for ANZOD
- Provide advice and support on reporting
- Maximise partnerships, networking and information sharing about organ donation across Australia and New Zealand
This committee provides a forum for discussion, coordination and collaboration between AOTA and associated Registries involved in utilisation and analysis of organ, eye and tissue data from ANZOD.
