Our Committees

Our committees are identified in governance structures for operational activities within the Registry. They include the Executive Committee, ANZDATA Advisory Committee, ANZOD Advisory Committee, Working Groups and Registry Management.

Executive Committee

The ANZDATA Executive Committee is responsible:

  • for day-to-day management of the registry including administration of the budget, management of human resources and negotiations with funding bodies
  • Ensures compliance with policies and fulfillment of statutory responsibilities
  • Supports the function of working groups
  • Ensures finances are audited annually and report these to the Advisory Committee.

The committee includes the Executive Officer, Deputy Executive Officer, Registry General Manager, current Chair of the Advisory Committee and past Chair of the Advisory Committee.

Membership

  • Professor Stephen McDonald

    Executive Officer

    Based at the Royal Adelaide Hospital, Professor Stephen McDonald is Director of Dialysis and a Senior Staff Nephrologist at The Central Northern Renal and Transplantation Service; and Clinical Director of Renal Services for the Country Health region of SA Health. He is Executive Director of the Australia and New Zealand Dialysis and Transplant Registry, and holds academic status as Clinical Professor in the Department of Medicine of the University of Adelaide, and Principal Research Fellow in the SA Health and Medical Research Institute.

  • Dr Philip Clayton

    Deputy Executive Officer and Editor

    Dr Philip Clayton is a Consultant Nephrologist at the Royal Adelaide Hospital and Editor of the Australia and New Zealand Dialysis and Transplant (ANZDATA) Registry Annual Report. His research interests include donor and recipient selection and outcomes, deceased donor kidney allocation, acute rejection, post-transplant diabetes mellitus and recurrent renal disease.

  • Ms Kylie Hurst

    General Manager and Nursing Director

    Kylie Hurst is General Manager for the Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), which includes the Australia and New Zealand Organ Donation Registry (ANZOD) and the Australian and New Zealand Living Kidney Donor Registry (ANZLKD).  She holds the academic qualifications of a Bachelor of Nursing and a Graduate Diploma of Nephrology. Her dedicated interest is end stage renal disease treatment, organ donation and transplantation outcomes and has a passionate interest in clinical quality registry development.

  • Professor Matthew Jose

    Chair of the Advisory Committee

    Professor Matthew Jose is the Professor of Medicine in the School of Medicine at the University of Tasmania, Adjunct Professor at the Menzies Institute for Medical Research and a Renal Physician at the Royal Hobart Hospital. He is passionate about improving the lives of people with kidney disease, safe and effective clinical care, and teaching, mentoring and supporting health professionals. Matthew has been the Chair of the ANZDATA Registry Steering Committee since 2014.

  • Professor Stephen Chadban

    Past Chair of the Advisory Committee

    Professor Steven Chadban works as a clinician scientist at Royal Prince Alfred Hospital and the University of Sydney. Educated in Newcastle, Monash and Cambridge, his clinical focus is on clinical nephrology and transplantation.

ANZDATA Advisory Committee

The primary responsibilities of the ANZDATA Advisory Committee are to determine policy regarding:

  • Data collection, including frequency, quantity, quality and type of data collected as well as methods of collection
  • Dissemination of information from the Registry in the form of reports and publications
  • Release of data from the Registry to contributors, government, industry and others seeking access to the database
  • Function and membership of the various working groups

In addition, the ANZDATA Advisory Committee will:

  • Ensure that the staffing of the Registry is appropriate to meet the objectives with respect to data collection, database management, analysis and dissemination
  • Ensure that the data collection and database management comply with the appropriate privacy legislation and regulations as apply in Australia and New Zealand and their jurisdictions
  • Report formally to key stakeholders including funder’s and professional bodies on the activities of the Registry
  • Advise the Executive on sources of income for the Registry

Membership

Chair of Advisory Committee - ANZDATA

  • Prof. Matthew Jose

    Chair of the Advisory Committee

    Professor Matthew Jose is the Professor of Medicine in the School of Medicine at the University of Tasmania, Adjunct Professor at the Menzies Institute for Medical Research and a Renal Physician at the Royal Hobart Hospital. He is passionate about improving the lives of people with kidney disease, safe and effective clinical care, and teaching, mentoring and supporting health professionals. Matthew has been the Chair of the ANZDATA Registry Steering Committee since 2014.

Registry Management

  • Prof. Stephen McDonald

    ANZDATA Executive Officer

  • Dr Philip Clayton

    Deputy Executive Officer

  • Ms Kylie Hurst

    Registry General Manager

Epidemiology Fellow

  • Dr Matthew Sypek

    Epidemiology Fellow (AMGEN)

    Dr Matthew Sypek is the current ANZDATA Epidemiology Fellow. A Nephrologist with part time clinical appointments at the Royal Melbourne Hospital and The Royal Children’s Hospital, Victoria. Matthew’s current research interests include the role of immunological factors in organ allocation and transplant outcomes, community preferences in organ allocation and factors impacting access to transplantation. 

Working Group Convenors

  • Dr Matthew Roberts

    Working Group Convenor - Haemodialysis

    Dr Matthew Roberts is a full-time Nephrologist at Eastern Health in Melbourne and Adjunct Associate Professor in the Eastern Health Clinical School, Monash University.  His PhD was on biochemical markers of cardiovascular disease in patients with all stages of chronic kidney disease, which he completed in 2007.  

  • Ms Monique Borlace

    Working Group Convenor - Peritonenal Dialysis

    Monique has been working as a Nephrology nurse for over 25 years and as a Nephrology Nurse Practitioner since July 2015 within South Australia. She has worked in all domains of Nephrology nursing throughout this time with a dedicated focus on Home Dialysis both in Peritoneal Dialysis and Haemodialysis. 

  • Dr Wai Lim

    Working Group Convenor - Transplantation

    Clinical Associate Professor Wai Lim is a consultant Nephrologist and Medical Director of Kidney Transplantation in the Department of Renal Medicine at Sir Charles Gairdner Hospital. Wai completed a PhD in transplantation immunology in 2006 and is involved in clinical transplant and chronic kidney disease research.

  • Dr Amelia Le Page

    Working Group Convenor - Paediatric (PAED)

    Amelia Le Page is a Paediatric Nephrologist based at Monash Children’s Hospital, Victoria.

  • Dr Rachel Walker

    Working Group Convener - Aotearoa New Zealand

    Rachel Walker was the first Renal Nurse Practitioner in New Zealand. She is an experienced qualitative researcher and has key linkages with other research groups nationally and internationally and has been a member of professional leadership groups both within nursing and within nephrology in New Zealand. Her PhD topic explored the factors which drive the uptake of home dialysis and included an economic focus.

  • Dr Jaqueline Hughes

    Working Group Convenor - Aboriginal and Torres Strait Islander Health

    Dr Jaqui Hughes is Australia’s first Indigenous kidney specialist and clinical nephrologist, she is also an Early Career Research Fellow at Menzies School of Health Research in Darwin. Jaqui has been Australian convenor of ANZDATA Registry Indigenous Health Working Group  since 2014.

  • Assoc. Prof. Rachael Morton

    Working Group Convenor - Patient Report Outcome Measures

    A health economist, Rachel Morton is the Deputy Director of Research at the NHMRC Clinical Trials Centre, and an Executive Board Member of the Health Services Research Association of Australia and New Zealand (HSRAANZ). Her current research program focuses on the incorporation of patient-centred and economic outcomes into clinical trials that facilitate policy decision making on the basis of values and preferences, as well as cost-effectiveness.

General Members

  • Dr William Mulley

    General Member

    William Mulley is a renal transplant physician at Monash Medical Centre, Melbourne, Australia and a Clinical Adjunct Associate Professor with Monash University. Bill’s PhD was in transplant immunology. He is active in clinical and basic science research with a focus on antibody mediated rejection of the renal allograft and vaccine responses in transplant recipients.

  • Dr Michael Collins

    General Member

    Dr Michael Collins is a Nephrologist based at Auckland City Hospital, New Zealand. Michael obtained a PhD in transplant immunology while working as a part-time Consultant Nephrologist at the Royal Adelaide Hospital in Australia. Michael’s research focuses on improving the clinical care of kidney transplant recipients by conducting clinical trials of interventions to improve transplant outcomes.

  • Vacant

    General Member

Stakeholders

  • Dr Kathy Hill

    Renal Society of Australasia (RSA) Representative

    Dr Kathy Hill is a renal nurse with a research interest. She holds a teaching and research position within the School of Nursing and Midwifery at the University of South Australia. Kathy completed her PhD in 2017 and whilst predominantly now in a teaching and research, Kathy still continues to practice as a haemodialysis nurse at her local Metropolitan Hospital where she also has a role in clinical academic liaison.

  • Dr Shilpa Jesudason

    Kidney Health Australia (KHA) Clinical Director

    Dr Shilpa Jesudason represents Kidney Health Australia (KHA) the peak organisation for patients living with kidney disease, their families and community. She is a Staff Specialist Nephrologist (Central Northern Adelaide Renal and Transplant Service (CNARTS) and Consulting Renal Physician (Women’s and Children’s Hospital). Her current clinical interests include the management of pregnancy-related issues in women with renal disease, including all stages of CKD, dialysis and transplant patients, living kidney donors and women with hypertension. 

  • Dr Neil Boudville

    Australia and New Zealand Society of Nephrology (ANZSN) Council Observer

    Neil Boudville is Professor of Renal Medicine and Sub-Dean for the Faculty of Medicine at the University of Western Australia. He is also the Head of Department of the Renal Unit at Sir Charles Gairdner Hospital and the Medical Director of the WA Home Dialysis Program (WAHDiP).

Advisory Meeting Minutes

The ANZDATA Advisory Committee convene four times a year; three teleconferences (TC) and one face to face (F2F) meeting, held annually in August.

ANZDATA Advisory Committee (AAC) Meeting Minutes

 

ANZOD Advisory Committee

The ANZOD Advisory Committee is responsible:

  • Advise ANZOD on activities that best inform organ donation practice across Australia and New Zealand
  • Provide a consultative forum that can effectively provide advice on the current and future direction for ANZOD
  • Provide advice and support on reporting
  • Maximise partnerships, networking and information sharing about organ donation across Australia and New Zealand

This committee provides a forum for discussion, coordination and collaboration between AOTA and associated Registries involved in utilisation and analysis of organ, eye and tissue data from ANZOD.