During 2018-2019, ANZDATA partnered with the Catching Some Air- Asserting Aboriginal and Torres Strait Islander Information Rights in Renal Disease Project to define best data practices for Aboriginal and Torres Strait Islander patient data held within ANZDATA.  

The Catching Some AIR- Asserting Aboriginal and Torres Strait Islander Information Rights in Renal Disease Project was conceptualised by leaders of the ANZDATA Indigenous Health Working group during 2016-2017, and the project was delivered by Menzies School of Health Research and funded by the Lowitja Institute during 2018-2019.

Members

  • Jaqui Hughes (Convenor)
  • Donisha Duff (Deputy Convenor)
  • Mark Tiong
  • Matthew Jose

Acknowledgements

Thanks to ANZDATA team who assisted with data analysis and interpretation for this infographic- Dr Chris Davies, Dr Mark Tiong, Ms Donisha Duff, Associate Professor Jaqui Hughes, Dr Namrata Khanal, Dr Phil Clayton, Ms Kylie Hurst, Prof Stephen McDonald. ANZDATA thanks the Lowitja Institute who funded the artist, Ms Norma Benger, as part of the Catching Some Air- Asserting Aboriginal and Torres Strait Islander Information Rights in Renal Disease Project, to create and/ or adapt some of the icons in the infographic. 

Latest News

  • updated infographic which describes key information about patients in 2018, who received dialysis treatment or who were living with a kidney transplant. 
  • ANZDATA also developed and produced two complementary videos describing the ANZDATA organisation, and which talks through the information described in the infographic

Meetings

  • May, 2020
  • August, 2020
  • November, 2020

Projects

  • ANZDATA Indigenous Data Sovereignty has been a key project of the ANZDATA Aboriginal and Torres Strait Islander Health Working group during 2015-2019

Data Collection

Achievements

March 2020 –

  • Video on the ANZDATA Registry presented by Jaqui Hughes
Image of Jaqui Hughes speaking at the NHMRC Excellence Awards 20200310

NHMRC Research Excellence Awards
Jaqui Hughes received an award for eGFR3 Study, which was the top ranked application in 2019 Inaugural Clinical Trial and Cohort Scheme.

As an invited speaker and in talking about preventing progressive kidney damage, Jaqui referenced ANZDATA, which collates and reports on ESKD numbers.

Photo credit: Irene Dowdy, ID Photo (NHMRC Official Photographer)

National Diabetes Week – social media posts (Koye et al 2019

A proposal for an inaugural First Nations Data Governance Framework for ANZDATA was presented on the 17th June 2019 in Darwin.

Photo Info (1): ANZDATA Steering Committee representatives, Prof Matthew Jose and Associate Professor Shilpa Jesudason, participated in the Catching Some AIR Talking Report Symposium (June 17th 2019, Darwin), also present Prof Karen Dwyer, Deakin University and Dr Jaqui Hughes, Catching Some Air Project Leader and convener ANZDATA Aboriginal and Torres Strait Islander Health Working group. 

Photo credit: Eleanor Gerrard

Photo Info (2): Professor Matthew Jose, representing ANZDATA Steering Committee participated in a panel with Ms Donisha Duff (Institute for Urban Indigenous Health and ANZDATA Aboriginal and Torres Strait Islander Health Working group), and Thursday Island community delegates, Mr Willie Wigness and Mr Robert Sagigi. 

Photo credit: Jaqui Hughes