Data Collection

Additional Data Collection Image

Element

Variable

Collected

Screen

Form

Patient Details

Ethnicity 1 & 2

At entry 

Patient Details 

New Patient  & Survey Form

Comorbidities

Episode of Calciphylaxis

During survey period

Postcode and Comorbidities

Survey Form

Haemodialysis

HDF Volume (Litres)

At end of survey period

Dialysis

Survey Form

Peritoneal Dialysis

24 hr Residual Urine Volume (Litres)

At end of survey period

Dialysis

Survey Form

Transplant

Anastomosis Site

At time of transplant 

Surgical Data 

Surgical Data Form

Graft Rejection

BANFF Indices

During survey period

Rejection Episode

Rejection Form

Parenthood

Expanded data set

During survey period

Parenthood 

Parenthood Form

Paediatric

Education Assessment

At start and
end of each survey 

Paediatric

Paediatric Form

Dialysis and Transplant Survey

Data is collected from all adult and paediatric Renal Units in Australia and New Zealand at 31st December. This encompasses all patients receiving renal replacement therapy (RRT), either dialysis or kidney transplantation, for the treatment of end stage kidney disease (ESKD) in the previous twelve months. Real time data is collected on all new incident patients commencing RRT, changes of RRT modality, changes in treating centre, death and other major events such as new cancer diagnoses.

The twelve month collection of data commenced from 31 December 2004. Prior to April 2004, data was collected twice a year as at 31st March and 30th September.

A survey form of previously recorded information for each patient is distributed for updating purposes, in either a preprinted, electronic format or combination, as indicated by each unit. Separate data forms for recording specific detail of paediatric, acute rejection, cancer and peritonitis are distributed, once again in preprinted, electronic or a combination of formats. A full list of ANZDATA DATA forms are available in electronic format.

The ANZDATA data dictionary and ANZDATA Post Survey Dataset Specifications describes the structure of the database. This is updated whenever a revised data collection form is produced and also whenever coding changes or database modifications are made.

A list of the participating units is available from the most recent ANZDATA Report Contents file on the ANZDATA website and is published with a wide national and international circulation.